GEORGE EDWARDS

Special Therasuit outfit

My name is George and if I could talk I would say….

"I was born 7 weeks earlier than I should have been at 33 weeks.  My mummy’s waters broke at 29 weeks and so we had to go in and out of hospital a lot to be monitored and looked after.  When I was born I was in the Neonatal Intensive Care Unit for 3 weeks.  I wasn’t very well and had lots of medicines and tests.

When I was about 6 months old, mummy and daddy realised that I wasn’t developing as quickly as I should be.  I couldn’t sit up and when I got a bit older I couldn’t move, crawl or pull myself up like other babies can.  I had an MRI scan when I was 1 and it showed I had a brain injury called Pereventricular Leucomalacia (PVL), this has caused developmental delays, sight problems, problems with my mobility and Cerebral Palsy in my legs.

I have a team of people who look after me; my Paediatric Consultants, Physiotherapist, Speech and Language Therapist, Occupational Therapist, Ophthalmologist and Dietician.  

Working with my physio,  I have made some great improvements.   My head control is really good and I can roll brilliantly!  I can also sit up for 30 seconds by myself.  I have equipment to help me, a special chair, a tot stander to practice standing in and a bath seat.  I really love my bathtime now.

Mummy and daddy and my family want me to have special spider therapy which is a special therasuit outfit that I can wear with bungee cords attached to a cage that looks like a spider web. This would help me to stay upright and works all my muscles really well.  The suit was originally developed for spacemen!   The treatment costs a lot of money but mummy and daddy hope I could have a block of sessions when my second birthday comes in July.  Lots of children who have had this therapy are able to stand up on their own or even walk!"

Ask Albie granted this request in June 2016.

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