My name is George and if I could talk I would say….
I was born 7 weeks earlier than I should have been at 33 weeks. My mummy’s waters broke at 29 weeks and so we had to go in and out of hospital a lot to be monitored and looked after. When I was born I was in the Neonatal Intensive Care Unit for 3 weeks, I wasn’t very well and had lots of medicines and tests.
When I was about 6 months old mummy and daddy realised that I wasn’t developing as quickly as I should be. I couldn’t sit up and when I got a bit older I couldn’t move, crawl or pull myself up like other babies can. I had an MRI scan when I was 1 and it showed I had a brain injury called Pereventricular Leucomalacia (PVL), this has caused developmental delays, sight problems, problems with my mobility and cerebral palsy in my legs.
I have a team of people who look after me, my Paediatric Consultants, Physiotherapist, Speech and language therapist, occupational therapist, Ophthalmologist and Dietician.
Working with my physio, I have made some great improvements, my head control is really good and I can roll brilliantly! I can also sit up for 30 seconds by myself. I have equipment to help me, a special chair, a tot stander to practice standing in and a bath seat, I really love my bathtime now.
Mummy and daddy and my family want me to have special spider therapy which is a special therasuit outfit that I can wear with bungee cords attached to a cage that looks like a spider web. This would help me to stay upright and works all my muscles really well. The suit was originally developed for spacemen! The treatment costs a lot of money but mummy and daddy hope I could have a block of sessions when my second birthday comes in July. Lots of children who have had this therapy are able to stand up on their own or even walk!